Harnessing technology to transform epilepsy care and save lives
Better data. Better connections. Better care.
What we are trying to change
We believe better information and better-connected systems can lead to better decisions, better care and better outcomes for people living with epilepsy.
We're bringing families, clinicians, researchers, technologists and partners together to explore what can be done differently.
The gaps are real
Families collect information every day. Clinicians make critical decisions. Yet too often, the information needed to see the full picture is fragmented, disconnected or difficult to access.
Leo's experience showed us what that can mean. We're exploring how technology, research and better-connected systems can help change it.
What we are building
Better Data
Better Connected Care
Better Communication
Helping bring meaningful patient information together.
Better Communication
Better Connected Care
Better Communication
Connecting the people who need to see and understand it.
Better Connected Care
Better Connected Care
Better Connected Care
Exploring technology that can support better decisions and outcomes.
Meet Leo
Leo was funny, kind, curious and full of magic. He lived with epilepsy from the age of three and died from SUDEP just two weeks after his 11th birthday.
His story is why Leo's Angels exists - and why we believe epilepsy care can, and must, be better connected.
A little boy who changed everything
Leo was bright, funny, kind-hearted and endlessly curious. He brought light wherever he went, and his life - though far too short - continues to make an impact.
A story that must be heard
Leo’s journey showed us the gaps that too many families living with epilepsy face. We share his story because we believe their experiences can help change what happens next.
Turning loss into purpose
We can’t bring Leo back or change what happened to him. But we can honour his life by using what we’ve learned to help create better-connected care for children and families living with epilepsy.
Change begins now...
We can't change with happened to Leo.
But we can change what happens next.
I have worked in the technology industry for more than 25 years. During Leo’s life, I saw first-hand how manual our healthcare system can be — how information sits in different places, how communication breaks down, and how decisions are often made without the complete picture.
And I kept thinking: surely technology can help us do this better.
Our experience of living with a child with epilepsy, navigating fragmented healthcare systems and ultimately losing Leo to SUDEP showed us both the gaps that exist and the opportunity to change them.
That is why we created Leo’s Angels.
We are a mission-driven initiative focused on using technology and innovation to help transform epilepsy care — connecting information, people and systems so that clinicians can make better-informed decisions and families can feel more supported, informed and empowered.
We are not here to replace the incredible work already being done by organisations such as Young Epilepsy, Epilepsy Action and SUDEP Action. We want to complement it by focusing on a space we believe has enormous potential: technology as a force for better-connected care.
We want to support and develop solutions that bring meaningful patient information together, improve communication, reduce delays and help healthcare teams see the bigger picture.
Because Leo was so much more than his diagnosis.
He was loving, chatty, funny, curious and incredibly kind. He deserved better. And while we cannot change his story, we can make sure his story helps change what happens to the children and families who come after him.
This is Leo’s legacy.
We are determined to turn grief into action, technology into opportunity, and Leo’s story into meaningful change.
And perhaps, along the way, sprinkle a little of Leo’s magic into the world.
Emma, Ben, Bonnie & Daniel O’Brien
Help us build what comes next
We're working towards a £750,000 mission to bring families, clinicians, researchers, technology and business together to transform epilepsy care.
